He then decided to make the five-hour drive from central California with his wife and two sons to learn more about Marfan syndrome. Only a couple of weeks away, Reg called to see if he could attend and be admitted into the Health Fair, which was hosted by Hoag Hospital. As always, the Foundation offered a Health Fair as part of Conference to provide expert advice for those who don’t have expertise in their area, as well as those who lack medical coverage or need a diagnosis. He learned the Foundation was hosting its 38th Conference in Newport Beach, CA, a five-hour drive from his home. I had never heard the word Marfan before.”Īfter talking with his cousin, Reg started to do online research and quickly discovered the Foundation’s website.
“But when my cousin was here for the funeral, she said her daughter had some eye issues and, at the request of the optometrist, she was later tested and confirmed to have Marfan syndrome. “We just thought these were strange, unusual happenings,” said Reg.
There had been a family history of heart issues and sudden death. Last year, Reginald “Reg” Bronson and his family gathered for the funeral of his brother who passed away suddenly at the age of 58.
